2014 Program

The 2014 Australasian Association of Bioethics & Health Law Conference was has held at the University of Western Australia, Perth from Thursday 2nd to Saturday 4th October 2014.

Presenting authors are indicated by an ‘*’.

Thursday 2nd October 2014
1300 Registration & speakers preparation open
1400 Delegate coaches depart Adina Apartments (then Parmelia Hilton) and Sullivans Hotel
Conference Opening – University Club Auditorium
Chair: Mal Parker
1500-1530 Welcome to Delegates | Mal Parker, AABHL President & Judy Allen, Conference Convenor
University Welcome, Erika Techera, Dean of Faculty of Law, University of Western Australia
Welcome to Country, Marie Taylor
1530-1630 Neuroethics Plenary | Chair: Sascha Callaghan
Pathological choices? Neuroscience meets the right to decide
Professor Bernadette McSherry & Professor Neil Levy
1630-1700 Afternoon Tea – University Club
1700-1800 Kirby Oration | Chair: Mal Parker, AABHL President
Screening for disease – Are we improving health or are we making sickness?
Winthrop Professor Christobel Saunders, Deputy Head of School, School of Surgery, University of Western Australia
1800-1900 Welcome Reception
Terrace, The University Club
1915 Delegate coaches depart University Club for Parmelia Hilton, Adina Apartments and Sullivans Hotel


Friday 3rd October 2014
0800 Registration & speakers preparation open
0745 Delegate coaches depart Adina Apartments (then Parmelia Hilton) and Sullivans Hotel
Plenary Session – University Club Auditorium
Chair: Judy Allen
0830-0920 Keynote Plenary
Contemporary conundra surrounding property rights to gametes
The Hon. James Joshua Edelman
Concurrent Session (20 minutes) – Arts Building
Fox Lecture Theatre
1 – Disability
Arts Lecture Room 6
2 – Research Ethics
Arts Lecture Room 5
Café 1
Chair: Camilla Scanlan Chair: Kandy White Chair: Ainsley Newson
0930-0950 SEX, LOVE and STERILISATION: Balancing the rights of reproduction for those with decision-making disabilities
Mr Dylan Desaubin
An ethics based framework for deciding whether to mutually recognize prior ethical review 
A/Prof Nikolajs Zeps*, Dr Mark McKenna, Mrs Gorette De Jesus, Rev Dr Joseph Parkinson
How should we decide for those who cannot decide for themselves?: The welfare principle and the regulation of Assisted Reproductive Technology 
A/Prof Sheryl de Lacey*, Dr Jeanne Snelling*
0955-1015 Intellectual disability and the right to family life: Equality under the Law 
Mrs Gemma McGrath*, Ms Catherine Carroll
Advocating for a more accountable and connected data monitoring process 
Dr Lisa Eckstein
1015-1045 Morning Tea – University Club
Concurrent Sessions (20 minutes) – Arts Building
Fox Lecture Theatre
3 – Consent
Arts Lecture Room 4
4 – Professional Regulation/Negligence
Arts Lecture Room 6
5 – Teaching Ethics
Arts Lecture Room 5
Workshop 1
Chair: Camilla Scanlan Chair: Mal Smith Chair: Ainsley Newson Chair: Sascha Callaghan
1045-1105 Dys(ability)topia? Conceptual considerations concerning legal capacity and supported decision-making
Prof Malcolm Parker
Dodgy doctors and negligent nurses, or plaintive patients? A longitudinal study of proceedings against health practitioners 
Dr Wendy Bonython*, Mr Bruce Arnold
Mining ethics expertise: Teaching ethics by making expert thinking visible
A/Prof Clare Delaney

Pathological choices? Neuroscience, autonomy and the right to decide


Brain surgery for overeating? Ethics of surgery to improve choice making
Prof Grant Gillett*

Diseased preferences: The implications of volitional impairments for legal capacity
Dr Richard Morris*

Pathologies of Choice
A/Prof Dominic Murphy*

Neurolaw: The ethics of neuroscience evidence in the courtroom
Dr Christopher Ryan*, Dr Allan McCay

1110-1130 Deciding who gets to decide consent and refusal of treatment
Ms Laura Fitzgerald
What’s law got to do with it?: Medical negligence, causation and the use of policy 
Ms Tracey Carver
Ethical concepts: providing medical students with a toolkit for clinical ethics 
Dr Simon Walker
1135-1155 New issues in informed consent in elective surgery
Mr Christopher McEwan
Freedom of information and the health sector: rhetoric, reality and the law 
Prof Ron Paterson
Are you my mentor? Mentoring, role-modelling and the ethics of disclosure in medical education
Dr Jenny Jones*, A/Prof Eleanor Milligan
1200-1220 The re-emergence of fault in ACC Treatment Injury in New Zealand
A/Prof Jo Manning, Prof Ron Paterson*
Ethics training – How do we best go about it? 
Dr Felicity Flack, Ms Kate Tan*, A/Prof Judith Allen
1220-1315 Lunch – University Club
Plenary Session – University Club Auditorium
Chair: Felicity Flack
1315-1405 Body Dysmorphic Disorder: Contrary indication or ethical justification for female genital cosmetic surgery in adolescents 
Dr Merle Spriggs, Associate Professor Lynn Gillam
Recent cases concerning ‘special medical procedures’; a changing focus in the underlying legal principles?
Dr Malcolm Smith

Concurrent Sessions (15 minutes) – Arts Building
Fox Lecture Theatre
6 – Professional Ethics
Arts Lecture Room 4
7 – Student Oral
Arts Lecture Room 6
8 – Students & Master
Arts Lecture Room 5
Workshop 2
Chair: Ben Gray Chair: Ian Kerridge Chair Malcolm Parker Chair: Rachel Ankeny

Show me the money: Bioethics, informed consent and pharmaceutical payola
A/Prof Bruce Arnold

Decisions about paediatric hand transplantation: Perspectives of Australian and US hand therapists 
Prof Katrina Bramstedt, Mr Nitin Mukesh*
Understanding and using values to determine the role of law in preventing obesity: Findings from a qualitative study
Miss Lisa James Kruck
How to decide: Using deliberative democratic methods to incorporate community views into health policy and practice
Prof Annette Braunack-Mayer
*, Dr Vicki Xafis*

Counselling of patients about the off-label use of medicines 
Dr H Laetitia Hattingh

How much should potential benefit to parents factor into surgeons’ decisions about paediatric facial surgery? 
Miss Lauren Notini*, A/Prof Lynn Gillam, Dr Merle Spriggs, Prof Tony Penington
John McPhee Prize Recipient
Restoring trust: The role of apology in preventing hospital violence in China
Ms Nuannuan Lin

Direct to the consumer nocebo effects – The ethics of pharma advertising & informing
A/Prof David Hunter

Infant male circumcision: Good practise or exploitation? 
Ms Aileen Odgers
Max Charlesworth Prize Recipient
The emergence and popularisation of autologous adult stem cell therapies in Australia: Therapeutic innovation or regulatory failure?
Ms Alison McLean

Professional boundaries in rural care settings
Dr Fiona McDonald*, Dr Christy Simpson

Deciding the best way to increase organ donation. Balancing policy, patients, staff and obligations
Ms Claire Gavin
Pathological choices and conscious choice: A perspective from neuroscience
Prof Grant Gillett 
1530-1600 Afternoon Tea – University Club
Concurrent Sessions (15 minutes) – Arts Building
Fox Lecture Theatre
9 – Bioethics
Arts Lecture Room 4
10 – Student Oral
Arts Lecture Room 6
11 – Bioethics
Arts Lecture Room 5
Workshop 3
Chair: Ben White Chair: Rachel Ankeny Chair: Lynn Gillam
1600-1615 Doing clinical ethics the importance of responsive equipoise
Dr Ben Gray
‘But you don’t need a license to parent…’ Who decides ART access when reproductive autonomy clashes with child welfare concern?
Miss Georgina Hall
Is hospital infection prevention and control doctors’ business?
Prof Lyn Gilbert*, A/Prof Ian Kerridge
Conceptualizing risk in the context of research ethics workshop
A/Prof David Hunter
1620-1635 How should bioethics decide what is morally relevant? On the trap of scientism and the need to sharpen old tools
Dr Christopher Mayes
State intervention in pregnancy: An appropriate response to Foetal Alcohol Spectrum Disorder? 
Ms Emily Gordon
Disproportionate harm to women in cases of surgical implant failure: why does it happen and what can be done?
Dr Katrina Hutchison*, Prof Wendy Rogers
1640-1655 Has paternalism really been reframed? A critique of recent advances in the ethical debate
Dr Jane Wilson
The patient who came in from the cold: Ethical challenges to clinical decision making with the introduction of genetic risk predictions from direct-to-consumer personal genome testing services
Miss Jacqueline Savard*, Dr Julie Mooney-Somers, Dr Ainsley Newson, A/Prof Ian Kerridge
Sweating the small stuff. Detail in multi-disciplinary communication about cadaveric organ transplantation facilitates ethical decision-making
Miss Harriet Etheredge*, Prof Claire Penn, Dr Jennifer Watermeyer
1700-1715 Lay people’s moral reasoning framework when considering consent options for hypothetical data linkage scenarios
Dr Vicki Xafis
Advance Care Directives: Not just about the end of life 
Ms Sandra L Bradley*, Ms Kathy Williams, Dr Jean E Murray
Parental virtue revisited: towards an account of the flourishing of the family
Dr Rosalind McDougall
1715 Sessions End
1730 Delegate coaches depart University Club for Parmelia Hilton, Adina Apartments and Sullivans Hotel
Free evening
Saturday 4th October 2014
0800 Registration & speakers preparation open
0815 Delegate coaches depart Adina Apartments (then Parmelia Hilton) and Sullivans Hotel
Plenary Session – University Club Auditorium
Chair: Steve Honeybul
0900-0950 Keynote Plenary
How should we decide? A South African transplant surgeon’s tale
Dr Elmi Muller
Concurrent Sessions (20 minutes) – Arts Building
Fox Lecture Theatre
12 – Futility
Arts Lecture Room 4
13 – Innovation
Arts Lecture Room 6
14 – Consent
Arts Lecture Room 5
Café 2
Chair: Katrina Bramstedt Chair: Colin Thomson Chair: Ian Kerridge Chair: Camilla Scanlan
1000-1020 How do doctors understand ‘futility’? 
Prof Ben White*, Prof Lindy Willmott, E/Prof Cindy Gallois, Prof Malcom Parker, Dr Sarah Winch, Prof Nicholas Graves, Ms Nicole Shephard, Ms Eliana Close
Regulatory perspectives of clinical innovation with cellular therapies: Research or practice? 
Dr Tamra Lysaght
Creating innovative informed consent materials: How hard can it be? 
Dr Rebekah McWhirter*, Dr Lisa Eckstein
Tough cases in paediatric clinical ethics
A/Prof Lynn Gillam*, A/Prof Clare Delany*, Dr Merle Spriggs, Dr Rosalind McDougall
1025-1045 Why doctors provide futile treatment: a complex mix of institutional, clinical and patient-related drivers 
Prof Lindy Willmott*, Prof Ben White, Prof Cindy Gallois, Prof Malcolm Parker, Prof Nicholas Graves, Dr Sarah Winch, Ms Nicole Shepherd, Ms Eliana Close
The medical methods exclusion reconsidering medical ethics and patents in nineteenth century Britain
Dr Catherine Kelly*, Dr Robert Burrell
Informed consent – How robust is the process? A survey of Resident Medical Officers (RMO) in New Zealand
Dr Alastair MacDonald*, Dr Curtis Walker, Dr Ravi Mistry
1045-1115 Morning Tea – University Club
Concurrent Sessions (20 minutes) – Arts Building
Fox Lecture Theatre
15 – Reproduction
Arts Lecture Room 4
16 – Organ Transplantation
Arts Lecture Room 6
17 – End of Life/Consent
Arts Lecture Room 5
Workshop 4
Chair: Brenda McGivern Chair: Elmi Muller Chair: Lindy Willmott
1115-1135 The perfect womb: How ectogenesis could enhance control over fetal characteristics
Mrs Evie Kendal
Dialysis in the setting of dementia? How should we decide? 
Prof Katrina Bramstedt
Quality improvement collaboratives at the interface between policy and practice in advance care planning and end of life care
Dr Craig Sinclair
Whose responsibility? The challenge of regulating innovative surgical procedures
Dr Katrina Hutchison*, Prof Tony Eyers, Dr Bernadette Richards*, Prof Colin Thomson
1140-1200 Morally justifiable parental licensing in the IVF context 
Dr Ryan Tonkens
Access to dialysis after refusing renal transplantation: The South African situation
Miss Harriet Etheredge*, Dr Graham Paget
Planning for the end: expanding models of advance health care decision-making for an ageing population 
A/Prof Meredith Blake*, Prof Robyn Carroll
1205-1225 We know women want Non-Invasive Prenatal Testing (NIPT). But how should they consent to it? 
Dr Ainsley Newson
How do I ask someone that?: The ethical issues associated with conducting research on a sensitive topic 
Dr Beatriz Cuesta-Briand*, Dr Natalie Wray, Prof Neil Boudville
How do New Zealand coroners decide whether to make preventive recommendations?
Dr Jennifer Moore
1230-1250 New uses for rejected theories: Moral status and the ethical ‘worth’ of children
A/Prof Henry Kilham*, A/Prof Ian Kerridge
The use and misuse of Titmuss in the organ market debate
Mr Julian Koplin
The ethics of persuasion, inducement, coercion and nudging in physiotherapy practice
A/Prof Clare Delany*, Dr Lynley Anderson
1250-1345 Lunch – University Club
Concurrent Sessions (20 minutes) – Arts Building
Fox Lecture Theatre
18 – Public Health
Arts Lecture Room 4
19 – Innovation
Arts Lecture Room 6
20 – Mental Health
Arts Lecture Room 5
Workshop 5
Chair: Lyn Gilbert Chair: Tamra Lysaght Chair: Meredith Blake
1345-1405 Who decides what is ‘ethical’ food and how? New approaches for engaging the public in food policy 
Prof Rachel Ankeny*, Dr Heather Bray
Exploring a duty to encourage innovative treatment 
A/Prof Bernadette Richards
Human rights protection for people with mental illness: The evolution and future of mental health laws in China
Prof Shiguo Liu
How should we manage conflicts of interest in biomedicine?
Dr Christopher Mayes*, Dr Wendy Lipworth*, A/Prof Ian Kerridge, Prof Cameron Stewart, Prof Paul Komesaroff, Prof Ian Olver

Regulating E-cigarettes: Which way for Australia? 
Prof Roger Magnusson

Considerations of justice and the integration of novel biotechnologies into clinical practice
Ms Jayne Hewitt
How are we to assess decision-making capacity in psychiatric illness? 
Dr Christopher Ryan*, Ms Sascha Callaghan, Dr Carmelle Peisah

A case study of Taiwan’s vaccination plan during the H1N1 influenza in 2009-Focusing on enhancement of health communication and transparency in a legal framework
Prof Wan-Tsui Chiang

When are surgical innovation decisions ethically acceptable?
Prof Colin Thomson
Unreasonable refusal of psychiatric treatment: Reform of the Mental Health Act 1996 (WA) 
A/Prof Sarah Murray*, Dr Tamara Tulich
1450-1510 Afternoon Tea – University Club
Closing – University Club Auditorium
Chair: Malcolm Parker, AABHL President
1510-1630 Closing Panel | Chair: Roger Magnusson
Reducing and preventing alcohol related harms: How should we decide?
Professor Mike Daube, Magistrate Catherine Crawford, Professor Steve Allsop, Associate Professor Ted Wilkes AO
1630-1700 Conference Close | Chair: Mal Parker
Obituary for Max Charlesworth
Student Prize Winners
Invitation to AABHL 2015 (Wellington) | Ben Gray
1710-1810 AABHL Annual General Meeting

Dinner guests walk to RPYC: Level ground 10 minute walk, guided by locals.

Guests not comfortable with this distance please contact the conference secretariat. Delegates who noted mobility issues during registration will be accommodated.

1830 till late Conference Dinner
The Royal Perth Yacht Club
2130 & 2230 Coaches depart RPYC for Parmelia Hilton, Adina Apartments and Sullivans Hotel