Dr Jane Williams1,4, Ms Priyanka Pillai3,4, Dr Miranda Smith3,4, Dr Florian Vogt2,4
1Sydney Health Ethics, University Of Sydney, Sydney, Australia, 2Kirby Institute, UNSW, Sydney, Australia, 3University of Melbourne, Melbourne, Australia, 4APPRISE CRE, Melbourne, Australia
Time sensitive COVID-19 research and surveillance proposals have placed a considerable burden on research ethics and governance and data custodianship arrangements. This burden has led to delays in rolling out projects.
Researchers involved in the APPRISE (Australian Partnership for Preparedness Research on Infectious Disease Emergencies) CRE have managed ethics, governance, and data sharing requirements across different study types in different locations, and we are working together to gather and consolidate experiences to shape future practice.
This perspectives session will comprise four or five 3-5 minute presentations outlining different barriers and enablers to pandemic research in Australia. We propose the following:
Dr Jane Williams will present an overview of an interview study with pandemic researchers and research ethics administrators about their experiences conducting time sensitive COVUD-19 research.
Ms Priyanka Pillai will address practical and ethical data sharing and custodianship issues in Australia
Dr Miranda Smith will present a case study of managing governance requirements in a large surveillance study
Dr Florian Vogt will present international comparisons
Dr Jane Williams will introduce suggestions for reshaping research ethics, governance, and data sharing requirements in preparation for the next pandemic.
Bio to come.