Program

The program overview below is provisional and will be updated as planning proceeds. Please check this page regularly.

Saturday 22nd September 2018 | Rydges Townsville

0800

Pre-Conference Workshop Registration Open

1330-1730

Clinical Ethics workshop | Portside, Rydges Townsville

This workshop is designed for those involved in the provision of clinical ethics support within organisations (such as clinical ethics committee members, clinical ethicists and clinicians). Sessions will explore various aspects of clinical ethics support including transgender-related issues, emerging end of life concerns, and the skills for conducting effective clinical ethics case consultations.

Sunday 23rd September 2018 | Rydges Townsville

0800	Pre-Conference Workshop Registration Open
0900-1200	Student/Early Career Researcher Stream Workshop \| Portside, Rydges Townsville Morning workshop including morning tea. Attendance at this workshop by students (delegates and non-delegates welcome) and Early Career Researchers, fully subsidised by AABHL. Numbers are limited and registration essential.
0900-1000	Research Ethics Stream Meeting \| Poolside Boardroom
1000-1100	Health Law Group Meeting \| Poolside Boardroom
1100-1700	AABHL Conference Registration Open \| Conference Centre, Rydges Townsville
1130-1300	Committee Meeting \| Palmer Boardroom
Opening Plenary \| Raffles Room Chair: Lynn Woodward
1300-1315	Welcome to Delegates \| AABHL 2018 Chair Lynn Woodward Welcome to Country President’s Welcome
1315-1430	Kirby Oration: Dr Anne-Maree Farrell Professor and Chair of Health Law and Society, ARC Future Fellow, Director Centre for Health Law and Society Sponsored by The Australian Centre for Health Law Research
1430-1500	Afternoon Tea \| Foyer
Concurrent Session A
	Savoy Room	Kingston Room	Raffles Room	Portside Room HEALTH LAW
1500-1520	When parents veto telling the truth to a seriously ill child Lynn Gillam	Normative ethics – Is that all there is? Is that all there is? A/Prof. Paul Macneill	Contesting the right not to know Dr Lisa Dive	Exploring the implications of collapsing boundaries in health law and ethics Dr Lisa Eckstein,Prof. Dianne Nicol, A/Prof. Mark Taylor, Dr Jessica Bell
1520-1540	High-stakes decision making for young children – an approach to parental refusals of treatment Dr Janine Penfield Winters	Remember when health ethics seemed simple A/Prof. Clare Delany	Inducement in research and lotteries – can a chance really be compensation? A/Prof. David Hunter
1540-1600	What is wrong with Best Interest Standard, Zone of Parental Discretion and the Harm Principle in paediatric decisions Dr Ben Gray	The “shazam” moment in empirical bioethics Prof. Angus Dawson	Collapsing borders between researchers and participants: Ethical complexities Dr Merle Spriggs
Changeover	Savoy Room	Kingston Room	Raffles Room	Portside Room EMPIRICAL ETHICS
1610-1630	Involuntary patients’ autonomy and the principle of open justice at mental health tribunal hearings? Dr Andrew Caple	The ethics of using companion robots for older adults’ wellbeing Simon Coghlan	Disorders of sex development: What guidance do doctors give to parents to tell their child about their intersex condition Muhammad Zubayr Ali Maudarbocus	Practices and standards in empirical (bio)ethics research: An open discussion Prof. Stacy Carter, Prof. Vikki Entwistle, Dr Bek McWhirter, Assistant Prof. Tamra Lysaght
1630-1650	Keeping secrets: Trust and confidentiality in counselling and psychotherapy A/Prof. Andrew Crowden, Janet Crowden	AI in healthcare: Who’s responsible? A/Prof. Bernadette Richards	Intersex: Contested bodies, contested identities Morgan Carpenter
1650-1710	Some bioethical implications of Indigenous suicide: Reflections on suicide in northern Ontario Dr Richard Matthews	Computer knows best? The need for value-flexible AI in patient care Dr Rosalind McDougall	Fairness and inclusion: Is it time to replace the gender binary in elite sport? Taryn Knox, A/Prof Lynley Anderson
1710-1730	Walk to Civic Reception – 3 minute walk to the Townsville Yacht Club
1730-1900	Civic Reception hosted by the Mayor \| Townsville Yacht Club The Welcome Drinks is the first social function of the conference. The ‘Ice-Breaker’. Don’t miss this opportunity to chance to catch up with colleagues and to meet other delegates, speakers and sponsors.

Monday 24th September 2018 | Rydges Townsville

0800	Registration Open \| Conference Centre, Rydges Townsville
Plenary Session \| Raffles Room
0830-0930	Integrity in Health Research Public Lecture
0930-0945	Short break
0945-1030	Invited Speaker: Professor Emma Kowal Emma Kowal is Professor of Anthropology in the Alfred Deakin Institute at Deakin University and former Deputy Director of the National Centre for Indigenous Genomics at the Australian National University. She is a cultural and historical anthropologist who previously worked as a medical doctor and public health researcher in Indigenous health before completing her PhD in 2007. Full biography.
1030-1100	Morning Tea \| Foyer
Concurrent Session B
	Savoy Room	Kingston Room	Raffles Room	Portside Room EMPIRICAL ETHICS
1100-1120	Bringing the old into the new: The integration of traditional health knowledge perspectives into modern health law Dr Jon Wardle	Complex factors affecting hospital doctors’ roles in and responsibilities for infection prevention Prof. Lyn Gilbert	Standard of care – can Bolam be resuscitated? Dr Charles Douglas	The ethics of market withdrawal of and disinvestment from medicines Jessica Pace, A/Prof Wendy Lipworth
1125-1145	Integrating Indigenous principles of human research ethics: The case of two Pacific Island Nations Etvina Lovo	The use of coercive public health and human biosecurity law in Australia: An empirical analysis Dr David J. Carter	The missing link: Legal education and active involvement by doctors in the medical negligence claims process as tools to reduce medical error and patient harm Dr Tina Popa, Fiona Milnes
1150-1210	The collapsing borders of the more-than-national health system of Timor-Leste Karel Caals	Privacy and technologically enhanced communicable disease surveillance Dr Jane Johnson	Mental health care in the age of empowerment Nicole Shepherd
1215-1235	Bridging the equity gap in access to and benefit sharing of biological materials must remain firmly on the global development agenda Dr Calvin W.I. Ho	One Health, rabies prevention and more-than-human considerations in Indigenous communities in Northern Australia Dr Chris Degeling	Towards an ecology of dementia through systems thinking Dr Michael Chapman
1235-1330	Lunch \| Foyer
Concurrent Session C
	Savoy Room	Kingston Room	Raffles Room	Portside Room RESEARCH ETHICS
1330-1350	Dual loyalty, medical ethics and healthcare in offshore asylum seeker detention A/Prof. Deborah Zion	A defence of risk relative capacity Sam Boyle	Direct-to-consumer markets for stem cells: A comparative analysis of Australia, Japan and Singapore A/Prof. Tamra Lysaght	Biobank networks, medical research and the challenge of globalisation Dr Lisa Dive, Dr Edwina Light, Miriam Wiersma
1350-1410	Overdiagnosis and risk: When is it justifiable to impose risk of harm in health care? Prof. Wendy Rogers	Challenging the core of legal doctrine: Negotiating the ‘supported’ decision making paradigm Dr Jeanne Snelling	Justice in genomic medicine: Challenges for Australian law and policy Prof. Belinda Bennett
1410-1430	What does the literature say about how we should prioritise pandemic influenza vaccines and what are the implications for Australasia? Dr Jane Williams	Hazardous changes in clinical practice Dr Judith Kennedy	John McPhee (Law) Student Essay Winner The boundaries of embryo research: Extending the 14-day rule Caitlin Davis
Changeover	Savoy Room	Kingston Room	Raffles Room	Portside Room RESEARCH ETHICS
1430-1450	Should we offer resuscitation to babies born at 22 weeks? Dr John Lantos	Victoria’s voluntary assisted dying laws: A regulatory analysis Prof. Ben White	Researcher-Native Relations: Ethical considerations relating to emerging animal models in Australian science Prof. Rachael A. Ankeny	Beyond consent and anonymity in the big data era Dr Vicki Xafis, Dr Wendy Lipworth, Dr Owen Schaefer
1450-1510	An ethical framework for antenatal counselling at the threshold of viability Dr Andrew Hutchinson	Not all physician assisted death policies are created equal: Assessing some practical and ethical implications of policy options for medical assistance in dying Daryl Pullman	Research and people unable to give informed consent to participate. Should the NZ Code of Rights be changed? Dr Cordelia Thomas
1510-1530	Hype and genomics: arguing for precautionary implementation to uphold autonomy in preconception screening A/Prof. Ainsley Newson	Collapsing the indefensible border between law and clinical evidence: A new constitutive model of medical education and decision-making Prof. Malcolm Parker	The need for ethics committees and evaluation agencies in coverage with evidence development: The case of crizotinib in Australia Dr Drew Carter
1530-1550	Afternoon Tea \| Foyer
Plenary Session \| Raffles Room
1550-1625	Invited Speaker: Dr Christopher Mayes Christopher Mayes is a Research Fellow in the Alfred Deakin Institute at Deakin University and Research-Affiliate in Sydney Health Ethics at the University of Sydney. He is an interdisciplinary scholar with disciplinary backgrounds in philosophy and sociology. Full biography.
1625-1700	Invited Speaker: Professor Luc Deliens Prof Luc Deliens has a PhD in Health Sciences and MSc in Sociology. Since 2000, he is Director of the End-of-Life Care Research Group, Vrije Universiteit Brussel & Ghent University, in Belgium
1700-1800	AABHL AGM \| Raffles Room All Members & Non-Members Welcome. Drinks and nibbles provided. Lucky door prizes! CLICK HERE TO BECOME A MEMBER!
1800	Empirical Bioethics Stream Networking Meeting \| Savoy Room
	Free evening

Tuesday 25th September 2018 | Rydges Townsville

0800	Registration Open \| Conference Centre, Rydges Townsville
Plenary Session \| Raffles Room
0830-0915	Invited Speaker: Professor Richard Murray Ethics, professionalism and the social contract: Socially accountable health professional education Professor Richard Murray is the Dean of the College of Medicine and Dentistry at James Cook University and the President of Medical Deans Australia and New Zealand. His career focus has been in rural and remote medicine, Aboriginal health, public health, tropical medicine, medical and health professional education and the healthcare needs of underserved populations. Full biography.
0915-1000	Invited Speaker: Professor Michael Selgelid Scalar Bioethics Professor Michael Selgelid is Director of the Monash Bioethics Centre; Director of the World Health Organization (WHO) Collaborating Centre for Bioethics at Monash; and Chair of the Global Network of WHO Collaborating Centres for Bioethics. He is also an Adjunct Professor in the School of Public Health and Preventative Medicine at Monash and a Monash-Warwick Honorary Professor in the Department of Politics & International Studies at the University of Warwick (UK). Full biography.
1000-1030	Morning Tea \| Foyer
Concurrent Session D
	Savoy Room	Kingston Room	Raffles Room	Portside Room TEACHING ETHICS
1030-1050	A world first 3D printed tibial implant: Recognising and managing the risk of ethical slippage at the boundary of research and clinical practice with respect to innovative technology Dr Jenny Jones	When language and words impact discussions and decisions around withholding or withdrawing clinically assisted nutrition and hydration in children with life limiting conditions A/Prof Helen Irving	Case study: Dr Bawa-Gaba – guilty of manslaughter by gross negligence Janine McIlwraith,Jacob Sutton	Are you ethical? Sharing practices in assessing medical ethics workshop A/Prof. David Hunter, Drew Carter
1050-1110	Stem cell registries: Collapsing the borders between research, commerce and clinical practice A/Prof. Wendy Lipworth	Thinking anew about death: Presenting the rationale for an Australian study of health professionals and public attitudes on death and organ donation Dr Cynthia Forlini	Contesting the certainty of Marion’s case A/Prof. Mandy Shircore
1110-1130	The ethics of farming human-pig chimeras and non-chimeric pigs Dr Julian Koplin	Maternal consumption of alcohol and moral responsibility in pregnancy A/Prof. Catherine Mills	What is ‘Right to Health’? A review SM Towhidul Karim
Changeover	Savoy Room	Kingston Room	Raffles Room	Portside Room PUBLIC HEALTH ETHICS
1140-1200	Ethics in personalised medicine research: Case study of an iPSC-based system for predicting individual treatment responses Dr Mary Jean Walker	Ulysses in Australia: Can a person with mental illness bind herself in advance to treatment? Katrine Del Villar	Contesting certainties and changing paradigms for young professionals: Establishing medical ethics curricula in Pakistan Dr Sarosh Saleem, Dr Fajar Raza	What are the responsibilities of AABHL in relation to Australia’s policy on asylum seeker detention? A/Prof. Deborah Zion, A/Prof. Paul Macneill, A/Prof. Chris Jordens, Prof. Angus Dawson
1200-1220	Reproductive freedom and flourishing in the age of in vitro-derived gametes Dr Lauren Notini	Psychiatric Advance Directives and the someone else problem: A question of practical identity Anson Fehross	Do health professionals understand enduring documents? The case for education Denise Craig
1220-1240	Max Charlesworth (Bioethics) Student Essay Winner In pursuit of our parenting ideals: A Kantian argument against genetic selection Jemimah Thompson	Existential loneliness, intimacy and end of life in residential aged care Julie Letts	Authority in empirical bioethics Prof. Stacy Carter, Prof. Vikki Entwistle
1240-1330	Lunch \| Foyer
Concurrent Session E
	Savoy Room	Kingston Room	Raffles Room	Portside Room TEACHING ETHICS
1330-1350	Working with communities: Engaging the public about the ethics of and decision to pursue personal genomic testing Dr Jacqueline Savard	Rapid challenges: Ethics and genomic neonatal intensive care Dr Christopheer Gyngell	Cards, profiles and templates – regulating human biometric Information and biological material Dr Marcus Smith	What can we learn from diverse cultures that could/should change our approaches to teaching bioethics? Dr Yvonne Cadet-James, Dr Ben Gray, Prof. Emma Kowal, Dr Richard Matthews, Dr Camilla Scanlan
1350-1410	Disclosure of genetic results to relatives – is there a gap between practice and regulation? Dr Carolyn Johnston, Dr Rebekah McWhirter,	Challenges with the introduction of genomic sequencing in medicine: genetic health professionals’ perspectives Dr Danya Vears	A proposal for recognising semen as a special class of property Benjamin Hofmann
Changeover	Savoy Room	Kingston Room	Raffles Room LIGHTNING TALKS
1415-1435	What do people with life-limiting illness considering euthanasia think about treatments at the end-of-life? Jessica Young	Increased access to reproductive genetic testing – silver bullet or Pandora’s box? Selina Metternick-Jones	Teaching bioethics and biotechnology through children’s cyberpunk: Children’s literature in the university ethics classroom Evie Kendal Print me an organ? Regulatory and legal considerations of 3D printed medical products Antonia Horst Through a glass darkly – evolving a practice of supported decision-making in the absence of a legal framework John Hopkins What mechanisms are suitable to protect Australian Indigenous knowledge Sara Potts
1440-1500	Medical futility at the end-of-life: an Australian policy analysis Eliana Close	Should all newborns have their genomes sequenced? Dr John Lantos	How compliant are dental practice Facebook pages with Australian health care advertising regulations? A Netnographic review Alexander Holden
1500-1530	Afternoon Tea \| Foyer
Closing Plenary Session \| Raffles Room
1530-1615	Invited Speaker: Professor Vikki Entwistle Vikki Entwistle will take up position as Professor and Director of the Centre for Biomedical Ethics at the National University of Singapore from 1 July 2018. She is currently Professor of Health Services Research and Ethics at the University of Aberdeen, Scotland. Full biography.
1615-1630	Closing Session & Handover
1730	Meet the ferry for the transfer to Magnetic Island
1745-2200	Conference Dinner \| Peppers Blue on Blue Resort, Magnetic Island Catch the ferry to the gorgeous Magnetic Island for a 3 course dinner and drinks to remember. Tickets no charge for full registrations and $120 for guests and day registrations. Book during registration.

Wednesday 26th September 2018 | Rydges Townsville

AEN CONFERENCE 2018: PRE CONFERENCE WORKSHOPS A selection of workshops will be held at the venue as part of the incoming AEN conference on Wednesday 26th September and AABHL Delegates are welcome to attend. Workshop fees are an additional cost to both AABHL and AEN delegates. To book click HERE
0730-0830	Registration
Room	Savoy Room	Kingston Room	Raffles Room
0830-1230	Consent in research Facilitators: Professor Ian Kerridge and Professor Paul Komesaroff This workshop will cover: Capacity to consent: Own consent; substitute decision maker for adults consent; parental / legal guardian consent. Approaches to consent: full consent; opt out; waiver of consent. Ascertaining level of risk and consent. Consent in different situations, e.g online research. Further information will be advised when available.	Research integrity Facilitators: Dr Jillian Barr and Ms Anne Walsh This workshop will cover: Update on Australian Code for the Responsible Conduct of Research. Managing misconduct – how to address problems that arise. How to facilitate adequate monitoring of studies. Further information will be advised when available.
1230-1300	Break
Room	Savoy Room	Kingston Room	Raffles Room
1300-1700	HREC members training Facilitators: Dr Conor Brophy and Ms Sara Potts The purpose of the workshop is to provide Human Research Ethics Committee (HREC) Members, HREC Administrators and those involved with the planning, conduct and review of research involving humans with a deeper understanding of the purpose and function of an HREC and their role within these committees. The workshop is designed to provide an opportunity for stakeholders to engage with facilitators experienced in ethical deliberation on research and their peers in a supportive learning environment. The workshop will focus on the National Statement and other relevant guidance by means of practical consideration of research ethics application and the role of the HREC and researchers in applying this guidance.	Ethics Goverance of Human Research Data in the Age of Genomics Facilitators: A/Professor Andrew Crowden and Dr Richard Roylance It is reasonable to expect that contemporary genomic data governance arrangements should be developed to respect humans and non-human animals, promote fair distribution of benefits, foster trust, reciprocity and integrity while offering support to the advancement of research and scientific knowledge. If governance is inclusive, sustainable and responsive to current and future scientific developments then it is likely to be practically useful and ethical. Many will benefit. In this workshop, key challenges associated with the ethical governance of new [global] hybrid genomic data infrastructures (including genomic biobanks) will be identified and briefly discussed. Participants will have the opportunity to consider cases and make suggestions in response to practical examples. The Australian context is used as an initial focus for discussion. However, the claims and suggestions are applicable anywhere. They are particularly pertinent to situations where the scientific reliance on new hybrid genomic data infrastructures is outpacing considered ethical analysis.	Research with Aboriginal and Torres Strait Islander people Facilitators: TBC This workshop will cover: How to conduct consumer engagement. Reflecting on different population sizes in research depending on research location . Ethical consideration when conducting research with First Nations peoples. Update on revised Aboriginal and Torres Strait Islander research ethics guidelines document.
1800	AEN Civic Reception hosted by the Townsville Mayor (AEN Delegates only)

Saturday 22nd September 2018 | Rydges Townsville

Sunday 23rd September 2018 | Rydges Townsville

Monday 24th September 2018 | Rydges Townsville

CLICK HERE TO BECOME A MEMBER!

Tuesday 25th September 2018 | Rydges Townsville

Wednesday 26th September 2018 | Rydges Townsville

AEN CONFERENCE 2018: PRE CONFERENCE WORKSHOPS

Facilitators: Professor Ian Kerridge and Professor Paul Komesaroff

Facilitators: Dr Jillian Barr and Ms Anne Walsh

This workshop will cover: Update on Australian Code for the Responsible Conduct of Research. Managing misconduct – how to address problems that arise. How to facilitate adequate monitoring of studies. Further information will be advised when available.

Facilitators: Dr Conor Brophy and Ms Sara Potts

Facilitators: A/Professor Andrew Crowden and Dr Richard Roylance

Facilitators: TBC