2018 Program

Kirby Oration:

Professor Anne-Maree Farrell is Professor and Chair of Health Law and Society, and Director of the Centre for Health Law and Society at La Trobe University.

Sponsored by The Australian Centre for Health Law Research

Civic Reception hosted by the Mayor | Townsville Yacht Club

The Welcome Drinks is the first social function of the conference. The ‘Ice-Breaker’. Don’t miss this opportunity to chance to catch up with colleagues and to meet other delegates, speakers and sponsors.

Integrity in Health Information Public Lecture | 

The primary and secondary use of confidential health data/information – what are the benefits and risks?

Health data is the most sensitive data and there is currently strong public interest in relation to the Australian Government’s My Health Record data collection software. Therefore, the lecture will traverse the way in which this health data can better inform health professionals and guide beneficial policy, as well as the need for data security due to the privacy risks which exist, particularly in this technological age and with the ever expanding use of AI. Click here for full description.

Invited Speaker: 

Emma Kowal is Professor of Anthropology in the Alfred Deakin Institute at Deakin University, Convenor of the Deakin Science and Society Network and former Deputy Director of the National Centre for Indigenous Genomics at the Australian National University. Her current appointments include membership of the Steering Committee of the Genomics Health Futures Mission, a major investment of the Australian Government in precision medicine. Full biography.

Presentation & Discussion – Proposal to amend AABHL sponsorship & promotions policy | Raffles Room

This proposal will be put forward at the AGM, but due to time restraints with the AGM we invite attendees to begin discussions around the proposal during lunch today.

John McPhee (Law) Student Essay Winner

The boundaries of embryo research: Extending the 14-day rule
Caitlin Davis

Invited Speaker: 

Christopher Mayes is a Research Fellow in the Alfred Deakin Institute at Deakin University and Research-Affiliate in Sydney Health Ethics at the University of Sydney. He is an interdisciplinary scholar with disciplinary backgrounds in philosophy and sociology.  Full biography.

Invited Speaker: 

Prof Luc Deliens has a PhD in Health Sciences and MSc in Sociology. Since 2000, he is Director of the End-of-Life Care Research Group, Vrije Universiteit Brussel & Ghent University, in Belgium

AABHL AGM | Raffles Room

All Members & Non-Members Welcome.  Refreshments provided.  Lucky door prizes!

CLICK HERE TO BECOME A MEMBER!

Invited Speaker: 

Professor Richard Murray is the Dean of the College of Medicine and Dentistry at James Cook University and the President of Medical Deans Australia and New Zealand. His career focus has been in rural and remote medicine, Aboriginal health, public health, tropical medicine, medical and health professional education and the healthcare needs of underserved populations.  Full biography.

Invited Speaker: 

Professor Michael Selgelid is Director of the Monash Bioethics Centre; Director of the World Health Organization (WHO) Collaborating Centre for Bioethics at Monash; and Chair of the Global Network of WHO Collaborating Centres for Bioethics.  He is also an Adjunct Professor in the School of Public Health and Preventative Medicine at Monash and a Monash-Warwick Honorary Professor in the Department of Politics & International Studies at the University of Warwick (UK). Full biography.

Max Charlesworth (Bioethics) Student Essay Winner

In pursuit of our parenting ideals: A Kantian argument against genetic selection
Jemimah Thompson

What mechanisms are suitable to protect Australian Indigenous knowledge
Sara Potts

Parental rights, best interests and significant harms: Medical decision-making on behalf of children post – Great Ormond Street Hospital v Yates [2017]
Dr Imogen Goold

Invited Speaker:

Vikki Entwistle is the Director of the Centre for Biomedical Ethics at the National University of Singapore.  Vikki’s research is highly interdisciplinary and collaborative. She draws particularly on social sciences and philosophy, and works with clinicians and patient-advocates as well as academic colleagues to develop practically useful thinking about how healthcare policy and practice can contribute to human flourishing.  Full biography.

Meet the ferry for the transfer to Magnetic Island. Boarding 1745, please do not be late, we cannot wait.

IMPORTANT:  The return transfer on the ferry has been chartered for the AABHL conference dinner.  It is not transferable to another ferry crossing time.

Conference Dinner | Peppers Blue on Blue Resort, Magnetic Island

Catch the ferry to the gorgeous Magnetic Island for a 3 course dinner and drinks. Entertainment will be provided by Pinky’s Disco Entertainment. Tickets no charge for full registrations and $120 for guests and day registrations.  Book during registration.

FERRY RETURN: Ferry will board 2115 for a 2130 departure.  Returning to the mainland 2155.

AEN CONFERENCE 2018: PRE CONFERENCE WORKSHOPS

A selection of workshops will be held at the venue as part of the incoming AEN conference on Wednesday 26th September and AABHL Delegates are welcome to attend.

Workshop fees are an additional cost to both AABHL and AEN delegates.

Facilitators: Professor Ian Kerridge and Professor Paul Komesaroff

This workshop will cover: Capacity to consent: Own consent; substitute decision maker for adults consent; parental / legal guardian consent. Approaches to consent: full consent; opt out; waiver of consent. Ascertaining level of risk and consent. Consent in different situations, e.g online research. Further information will be advised when available.

Facilitators: Dr Jillian Barr and Ms Anne Walsh

This workshop will cover: Update on Australian Code for the Responsible Conduct of Research. Managing misconduct – how to address problems that arise. How to facilitate adequate monitoring of studies. Further information will be advised when available.

Facilitators: Dr Conor Brophy and Ms Sara Potts

The purpose of the workshop is to provide Human Research Ethics Committee (HREC) Members, HREC Administrators and those involved with the planning, conduct and review of research involving humans with a deeper understanding of the purpose and function of an HREC and their role within these committees. The workshop is designed to provide an opportunity for stakeholders to engage with facilitators experienced in ethical deliberation on research and their peers in a supportive learning environment. The workshop will focus on the National Statement and other relevant guidance by means of practical consideration of research ethics application and the role of the HREC and researchers in applying this guidance.

Facilitators: A/Professor Andrew Crowden and Dr Richard Roylance

It is reasonable to expect that contemporary genomic data governance arrangements should be developed to respect humans and non-human animals, promote fair distribution of benefits, foster trust, reciprocity and integrity while offering support to the advancement of research and scientific knowledge. If governance is inclusive, sustainable and responsive to current and future scientific developments then it is likely to be practically useful and ethical. Many will benefit. In this workshop, key challenges associated with the ethical governance of new [global] hybrid genomic data infrastructures (including genomic biobanks) will be identified and briefly discussed. Participants will have the opportunity to consider cases and make suggestions in response to practical examples. The Australian context is used as an initial focus for discussion. However, the claims and suggestions are applicable anywhere. They are particularly pertinent to situations where the scientific reliance on new hybrid genomic data infrastructures is outpacing considered ethical analysis.

Facilitators: TBC

This workshop will cover: How to conduct consumer engagement. Reflecting on different population sizes in research depending on research location . Ethical consideration when conducting research with First Nations peoples. Update on revised Aboriginal and Torres Strait Islander research ethics guidelines document.