2022 Program -

Australasian Association of Bioethics & Health Law

Conference Program

Thursday 17th – Saturday 19th November 2022

The program below is provisional and subject to change. Please check back regularly for updates.

	Thursday, 17th November 2022
0700 – 0800	*Registration* Foyer, Hobart Function and Conference Centre
0800 – 1030	OPENING PLENARY SESSION Sovereign Room Streamed Live CHAIR: Bernadette Richards
0800 – 0830	Welcome to Country \| Alison Overeem Official Opening \| Lieutenant Governor, The Honourable Justice Alan Blow AO Welcome to Delegates \| Rebekah McWhirter and Lisa Eckstein 2022 AABHL Conference Convenors
0830 – 0930	Keynote Presentation Ted Dove Reader In Health Law And Regulation At The School Of Law, University Of Edinburgh Research Ethics
0930 – 0935	Move to concurrent rooms
	Sovereign Room	Marina Room	Gretel Room
	RAPID-FIRE PRESENTATIONS 1.0 Streamed Live	RAPID-FIRE PRESENTATIONS 1.1 Sessions Recorded	RAPID-FIRE PRESENTATIONS 1.2 Sessions Recorded
CHAIR	Anne Preisz	Wendy Lipworth	Megan Prictor
0935 – 0940	Can improving the health of youth offenders reduce the risk of reoffending? A preliminary study from Queensland Sam Boyle	Australian Citizens’ Jury on Genome Editing Dianne Nicol	Do we need ‘more law’ to address the problem of ethical debt in use of big health data? – an exploration of the fiduciary model in health data governance Minna Paltiel, Bernadette Richards
0940 – 0945	Can a Court Offer an ‘Objective’ Evaluation of Best Interests on Behalf of a Child? Imogen Goold	Rapid genome sequencing and the limits of informed consent Christopher Gyngell	The emerging European Union regulatory framework on secondary uses of health data: what will change? Mahsa Shabani
0945 – 0950	SESLHD Clinical Ethics IPU Decision Making matrix: A Clinical Ethics tool to assist local Drug and Therapeutic Committees in decision making around high cost medicines for individual patient use Linda Sheahan	An Evolving Ethics in the Era of Consumer Genomics Jacqueline Savard	Exploring the concept of a data trust in the health research context: suitability, desirability and considerations for translation of theory into practice. Jessica Bell
0950 – 0955	T he National Quality Framework for Alcohol and Other Drug Treatment Services in Australia: The Challenges of a Dual Approach to Monitoring and Enforcement Simone Henriksen	Making good on the promise of genomics: the question of routine reanalysis Gabriel Watts	Sharing health and social welfare data across jurisdictions and institutions in Australia: A scoping review protocol James Scheibner, Luke Wakefield
0955 – 1000	Therapeutic Goods Administration: A toothless tiger in the regulatory jungle? Aminath Ali Mariya	From cell transplants to genome edits: Regulation and bioethics of existing and emerging interventions for sickle-cell disease Christopher Rudge	A review of physicians’ experiences of assisted dying Laura Ley Greaves
1000 – 1010	Rapid-Fire Q&A	Rapid-Fire Q&A	Rapid-Fire Q&A

1010 – 1040	MORNING TEA
1040 – 1215	CONCURRENT SESSIONS
	Sovereign Room	Marina Room	Gretel Room
	PANEL PRESENTATION 1.0 Streamed Live	ORAL PRESENTATIONS 1.0 Sessions Recorded	ORAL PRESENTATIONS 1.1 Sessions Recorded
CHAIR	Michael Dunn	Cynthia Forlini	Tess Whitton
1040 – 1100	Delineating empirical bioethics approaches: integrating questions and questioning integration A/Prof Michael Dunn, Centre for Biomedical Ethics, National University of Singapore, with a panel comprising: Prof Jackie Leach Scully, Dr Jane Williams, Dr Jacqueline Savard	Reproductive deliberation: Supporting parents’ autonomous decision-making in prenatal genetic counselling Chanelle Warton	Walking the Talk? Comparing Proposed and Actual Research Dissemination Activities at a regional teaching hospital Stella Gwini
1100 – 1120		Rationalizing IRBs: Practical Implications of a Public Justification Requirement Muralidharan Anantharaman	Testing Commons-Based Models for the Future of Research and Therapeutics in Australian Stem Cell Research Rachel Ankeny, Dianne Nicol
1120 – 1140		Public trust in genomic data sharing: uncertainty, control, and waivers of consent Vanessa Warren	Are patients and caregivers regulatory actors? A qualitative study of their role in regulating VAD in Victoria, Australia Ruthie Jeanneret
		“I don’t think it’s a black and white issue”: Australian public perspectives on genomic data storage and sharing Danya Vears	RAPID-FIRE PRESENTATIONS 1.3
1140 – 1145			Assisted Dying Services in Aotearoa New Zealand: Challenges and lessons learnt Rob McHawk
1145 – 1150			Early experiences of voluntary assisted dying in Western Australia: reflections from key stakeholders Casey Haining
1150 – 1155			End-of-life decision-making in ED and ICU in Queensland, and the law: Results of a retrospective chart audit Jayne Hewitt
1155 – 1200			Six Peas in a Pod? Similarities and Differences between Voluntary Assisted Dying Laws in the Australian States Katrine Del Villar
1200 – 1205			How is Religious Based Objection to Voluntary Assisted Dying Protected in Australia? Michaela Okninski
1205 – 1215		Buffer/ Q&A	Quick Fire Q&A

1215 – 1330

LUNCH

1330-1500	CONCURRENT SESSIONS
	Sovereign Room	Marina Room	Gretel Room
	ORAL PRESENTATIONS 1.2 Streamed Live	ORAL PRESENTATIONS 1.3 Sessions Recorded	PANEL PRESENTATION 1.1 Sessions Recorded
			Julian Koplin and Craig Stanbury
			Increasing Impact Ainsley Newson, Chris Gyngell, Jane Williams
CHAIR	Tamra Lysaght	Stacy Carter
1330 – 1350	Max Charlesworth Student Essay Winner Serene Ong From rights to responsibilities: concerning the ethical issues of familial risk disclosure	Connecting the ‘old’ and ‘new in litigating medical disputes: The traditional approach of medical negligence and the emerging use of the Australian Consumer Law Joel Grieger
1350 – 1410	Max Charlesworth Student Essay Winner Margaret Palazzo Autonomy, Altruism and Assent: the Therapeutic Misconception in Early Phase Paediatric Oncology Research	Socio-ecological justice and reimagining just health systems Bridget Pratt
1410 – 1430	Patients recording clinical consultations: results of an Australian survey Megan Prictor	Research involving potential deceased donors – managing complexities in consent Dominique Martin
1430 – 1435	The Regulation of Medical Device Representatives: A Question of Trust Bernadette Richards	RAPID-FIRE PRESENTATIONS 1.4
		The legal and ethical implications of using health data for practice reflection Kavisha Shah
1435 – 1440		Ethics in the Interim: The Ethical Dilemmas of Data Monitoring Committees Lisa Eckstein
1440 – 1445		Barriers to equitable regional research participation; Time to Harmonise Research Governance Lisa Fry
1450 – 1455	Rapid-Fire Q&A	Rapid-Fire Q&A

1500-1530	AFTERNOON TEA
1530 – 1630	PLENARY Sovereign Room Streamed Live CHAIR: Bernadette Richards
1530 – 1630	Professor Cameron Stewart Member of Sydney Health Law and an associate member of Sydney Health Ethics, Sydney Medical School Kirby Oration The Daughters of Themsis: Dike, Eunomia and the Problem of Modern Australian Health Law

1800 – 1900

Government House Reception

Government House Hobart
Registration required. Limited tickets available.

	Friday, 18th November 2022
0830 – 0900	*Registration* Foyer, Hobart Function and Conference Centre
0900 – 1030	OPENING PLENARY SESSION Sovereign Room Streamed Live CHAIR: Rebekah McWhirter
0900 -1030	Welcome to Day 2 Keynote Presentation Kalinda Griffiths Scientia Lecturer – Centre for Big Data Research in Health, UNSW Developing approaches towards an Indigenous Data Governance agenda in health research This session is sponsored by Deakin Science and Society Network

1030 – 1100	MORNING TEA
1100 – 1230	CONCURRENT SESSIONS
	Sovereign Room	Marina Room	Gretel Room
	ORAL PRESENTATIONS 1.4 Streamed Live	ORAL PRESENTATIONS 1.5 Sessions Recorded	PANEL PRESENTATION 1.2 Sessions Recorded
CHAIR	Jacqueline Savard	Michelle King	Stacy Carter
1100 – 1120	Ethics of corporate providers of assisted reproductive treatment (ART) Sara Attinger	If it walks like a duck…: Monitored Emergency Use of Unregistered and Experimental Interventions (MEURI) is research G Owen Schaefer	Artificial intelligence, healthcare and bioethics: a panel discussion Stacy Carter, Director, Australian Centre for Health Engagement Evidence and Values (ACHEEV)with a panel comprising: Dr Yves Saint James Aquino, Dr Mark Howard, Associate Professor Bernadette Richards, Professor Jackie Leach Scully
1120 – 1140	Protecting the rights of people with innate variations of sex characteristics (people with intersex traits/DSD) in medical settings Morgan Carpenter	Who is Responsible when the Literature Lies? A Review of the Legal Obligations of Journals with Respect to Misconduct in Medical Research Naomi Holbeach
1140 – 1200	Knowing by (Artificial) Heart: Relating to the world with an artificial heart Pat McConville	CH-CH-CHANGES: ETHICAL ISSUES IN THE DESIGN, REGULATION, AND USE OF ADAPTIVE MACHINE LEARNING SYSTEMS IN MEDICINE Robert Sparrow, Joshua Hatherley
1140 – 1200
	RAPID-FIRE PRESENTATIONS 1.5	RAPID-FIRE PRESENTATIONS 1.6
1200 – 1205	Regulating non-invasive prenatal testing (NIPT) for fetal sex determination Michelle Taylor-Sands, Chanelle Wharton	Examining the bottleneck of empirical data in the ethics of cognitive enhancement Cynthia Forlini
1205 – 1210	Reproduction Misconceived- why there is no right to reproduce and the implications for ART access Georgina Hall	The ethical examination of non-validated closed-loop deep-brain stimulation treatments in psychiatric surgery Ian Stevens
1210 – 1215	Rapid-Fire Q&A	Should Body Mass Index (BMI) be used in the clinical setting Taryn Knox
1215 – 1220		Rapid-Fire Q&A
1220 – 1230		Rapid-Fire Q&A

1230 – 1330

LUNCH

1330 – 1500	CONCURRENT SESSIONS
	Sovereign Room	Marina Room	Gretel Room
	ORAL PRESENTATIONS 1.6 Streamed Live	ORAL PRESENTATIONS 1.7 Sessions Recorded	ORAL PRESENTATIONS 1.8 Sessions Recorded
CHAIR	David Hunter	Rachel Ankeny	Michaela Okninski
1330 – 1350	Ethics and ENDS Elizabeth Fenton	An illusion of inclusion: exploring the experiences of people with intellectual disability in genomic health care services Jackie Leach Scully	John McPhee Student Essay Winner Briahna Connolly Mitochondrial Donation in Australia: Maeve’s Law, The Regulatory Landscape and Ethical Issues
1350 – 1410	Ethical implications of rescinding free covid-19 treatment for unvaccinated individuals in Singapore Mathavi Senguttuvan	Ethical consideration of clinical trials for rare diseases in children: Proportionality protection and precaution Anne Preisz, Helen Young	Mitochondrial Donation and Egg Donor Consent in Australia Catherine Mills
1410 – 1430	Health activism, during the COVID-19 pandemic and beyond Ryan Essex	Families living with MJD on Groote Eylandt – Exploring options Libby Massey	The role of non-invasive prenatal testing request forms in Australian clinical settings Molly Johnston
1430 – 1435	RAPID-FIRE PRESENTATIONS 1.7	RAPID-FIRE PRESENTATIONS 1.8	The understanding and attitudes of the Australian public and medical/healthcare personnel to mitochondrial donation Ezra Kneebone, Liz Sutton
1430 – 1435	A legal and ethical critique of the use of quarantine as a primary public health measure to prevent COVID-19 in Queensland Scott Kitchener	Autonomy as a justification for intervention in cases of undue influence Ryan Friets
1435 – 1440	Professional Oversight of Emergency-Use Interventions and Monitoring Systems: Ethical Guidance From the Singapore Experience of COVID-19 Tamra Lysaght	Stakeholder Perspectives on Machine Learning Supported Clinical Decision Making for People Newly Diagnosed with Epilepsy: A qualitative study Mark Howard
1440 – 1445	Neurosurgery, COVID and the Rule of rescue Stephen Honeybul	Looking beyond the rhetoric of the ‘indivisibility and interdependence’ of human rights in the Disability Convention Julia Duffy
1445 -1450	Rapid-Fire Q&A	Rapid-Fire Q&A
1450 – 1455			Q&A
1455 – 1500			Q&A

1500 – 1530	AFTERNOON TEA
1530 – 1700	CONCURRENT SESSIONS
	Sovereign Room	Marina Room	Gretel Room
	ORAL PRESENTATIONS 1.9 Streamed Live	ORAL PRESENTATIONS 2.0 Sessions Recorded	ORAL PRESENTATIONS 2.1 Sessions Recorded
CHAIR	Serene Ong	Eliana Close	Yves Saint James Aquino
1530 – 1550	High-risk homebirth, and making connections during contentious birth decisions Jindalee Skerman	Missed opportunities: saving lives through organ donation following voluntary assisted dying (VAD) Robert Ray	Technological Solutions to Loneliness- Are They Enough? Zohar Lederman
1550 – 1610	The creation of Birth Dissonance and the Role of an ‘Ethics of Care’ Elizabeth Sutton	Patient access to voluntary assisted dying: a qualitative study of caregivers’ perceptions of barriers and facilitators Ben White	What to do About Overpopulation? Craig Stanbury
1610 – 1630	Understanding epistemic injustice in birth trauma Angela Ballantyne, Alicia Coram	How does institutional objection impact medical assistance in dying in Canada? A qualitative study of health care providers and family caregivers Eliana Close
	RAPID-FIRE PRESENTATIONS 1.9	RAPID-FIRE PRESENTATIONS 2.0	RAPID-FIRE PRESENTATIONS 2.1
1630 – 1635	Informed consent for vaginal delivery: bringing shared decision making into a natural phenomenon Mariyah Hoosenally	Voluntary Assisted Dying and Conscientious Objection Ronli Sifris	Age and Ageism. Nature vs Inertia in Health Care Lisa Mitchell
1635 – 1640	A Novel Foucauldian Feminist Account to Address the Undertreatment of Women’s Persistent Pain Danica Davies	Mapping Regulation in the Belgian Assisted Dying Legal Framework: A Systematic Scoping Review of the Literature Madeleine Archer	Gendered Agesit Biases in Medical Implant Design Lida Sarafraz
1640 – 1645	Rapid-Fire Q&A	Conscientious Objection to Voluntary Assisted Dying Aurelie Copin	The Australian public’s views regarding direct notification of at-risk relatives (with patient consent) by health professionals Jane Tiller
1645 – 1650		Closing the Final Chapter: Existential Suffering and Biographical Endings as a Foundation for Receiving Assisted Dying or Euthanasia Tessa Holzman	Foreknowledge and hope: the socioemotional role of family history Serene Ong
16050 – 1655		Rapid-Fire Q&A	Rapid-Fire Q&A
1655 – 1700

1900 – Late

Conference Dinner

AURA Hobart
Level 12/110 Liverpool St, Hobart
Cost: Inclusive for full registrations and exhibitors. Please book during the registration process. Additional tickets can be purchased for $150.

The sunny days are coming, perch yourself over looking Hobart and enjoy some of that sunshine in style. Open til late tonight and 11 30 am Saturday. Walk ins always welcome.

	Saturday, 19th November 2022
0830 – 9000	*Registration* Foyer, Hobart Function and Conference Centre
0900 – 1000	OPENING PLENARY SESSION Sovereign Room Streamed Live CHAIR: Lisa Eckstein
	Welcome to Day 3 Keynote Presentation Holly Fernandez Lynch Md Presidential Assistant Professor Of Medical Ethics, University Of Pennsylvania Ethics committee precedent
1000 – 1030	Panel Discussion Jeremy Kenner, Ingrid Winship, Colin Thomson AM

1030 – 1100	Morning Tea
1100 – 1300	CONCURRENT SESSIONS
	Sovereign Room	Marina Room	Gretel Room
	PANEL PRESENTATION 1.3 Streamed Live	ORAL PRESENTATION 2.2 Sessions Recorded	S/ECR PANEL Sessions Recorded
CHAIR	Ros McDougall	Michaela Okninski	Molly Johnston
1100 – 1120	Gift or gimmick? Using podcasts in bioethical education Ros McDougall, Kathryn MacKay, Georgina Hall	Enabling Health Data Governance Mark Taylor	How to Fail (Successfully) Chaired by Dr Molly Johnston, Monash Bioethics Centre, Monash University With a panel comprising: Dr Danya Vears, Biomedical Ethics Research Group, Murdoch Children’s Research Institute; Mr Colin Thomson AM; Prof Catherine Mills, Monash Bioethics Centre, Monash University
1120 – 1140		A review of adaptive governance for health research and innovation governance Tess Whitton
1140 – 1200		Supported Decision-Making and the Hard Cases: Considering Article 12 of the UNCRPD and People with Profound Intellectual Disabilities Michelle King
1200 – 1220		Sharing Linked Data for Health Research: Better Decision Making Carolyn Adams, Felicity Flack
		RAPID-FIRE PRESENTATIONS 2.3
1220 – 1225		In Defence of Dissent: Group Proxy Appointments and the Value of Decisional Deadlock Anson Fehross
1225 – 1230		Constructing Appropriate Bioprinting Regulations in Australia: The Ethical Importance of Recognising a Liminal Technology Megan Moss
	RAPID-FIRE PRESENTATIONS 2.2		RAPID-FIRE PRESENTATIONS 2.4
1230 – 1235	Intergrating ethics – engaging students by using real case studies drawn from students David Hunter	Open Disclosure of Adverse Medical Events and a Statutory Duty of Candour Tina Cockburn	Disrupting moral worlds in the pursuit of good practice: Ethical issues in the conduct of empirical bioethics research Michael Dunn
1235 – 1240	Responding to Reductionist and Eliminativist Challenges to Appeals to Vulnerability through a Nussbaumean Approach Hojjat Soofi	Virtual Autopsies in Health Law: Transforming Medico-Legal Investigations Marc Trabsky	Let’s focus on what connect us: Evaluating a Clinical Ethics Service via Inductive Analysis and Quality Improvement Rebecca Lindsay-Mealey
1240 – 1245	A case for interrogating the metaphysics of genes Lisa Dive	How do lawyers choose medical experts for injury claims? Genevieve Grant	Ethical gaps in the ISSCR guidelines on human-animal chimera research Julian Koplin
1245 – 1250	The Ethical Implications of Artificial Intelligence – A Review of the Impact on Radiology Saumya Chanana	Quick Fire Q&A	Cross-border transfer of sensitive health data for mobile digital technologies: Outcomes from a mixed method modified Policy Delphi in Singapore Hui Jin Toh, Hui Yun Chan
1250 – 1255	Quick Fire Q&A		Cultural Relativity and Cultural Safety how do they interact in Clinical Medicine Ben Gray
1255 – 1300	Quick Fire Q&A		Quick Fire Q&A

1300-1400	LUNCH AABHL AGM
1400 – 1440	CONCURRENT SESSIONS
	Sovereign Room	Marina Room	Gretel Room
	ORAL PRESENTATION 2.3 Streamed Live	ORAL PRESENTATION 2.4 Sessions Recorded	ORAL PRESENTATION 2.5 Sessions Recorded
CHAIR	Liz Sutton	Bek McWhirter	Tina Cockburn
1400 – 1420	Ethics and funding precision health: augmenting health technology assessment Ainsley Newson	Using the courts to facilitate human rights based interpretations of civil mental health legislation Giles Newton-Howes	Bias mitigation in healthcare Artificial Intelligence: professional perspectives Yves Saint Aquino
1420 – 1440	Exclusion of Culturally and Linguistically Diverse Populations in Research Richard Larsen	Moral justifications for non-essential interventions in in-vitro fertilisation cycles Siun Gallagher	Perfect imperfection: Resolving the therapy-enhancement debate Sinead Prince

1445 – 1600

CLOSING PLENARY
CHAIR: Rosalind McDougall

1445 – 1545

Keynote Presentation

Kate & Mandy
Too Peas in a Podcast

1545 – 1600

2022 Wrap-up & Handover
Conference Close

2022 Program

Australasian Association of Bioethics & Health Law

Conference Program

Thursday, 17th November 2022

Friday, 18th November 2022

Saturday, 19th November 2022

ABOUT THE ASSOCIATION

CONFERENCE MANAGERS

LINKS

ACKNOWLEDGEMENT OF COUNTRY