2021 AABHL Program

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Australasian Association of Bioethics & Health Law

Online Conference Program

Thursday 18th – Saturday 20th November

NAVIGATE PROGRAM:

THURSDAY 18TH

FRIDAY 19TH

SATURDAY 20TH

ON-DEMAND PRESENTATIONS

Thursday, 18th November 2021
0900-0930	Platform Orientation
0930-0955	Icebreaker Networking
1000 – 1105	PLENARY #1 Chair: Bernadette Richards, AABHL President
1000-1020	Conference Opening & Welcome Housekeeping and Opening Address Welcome to Country
1020-1105	Keynote Address Dr Arran Culver Chief Clinical Advisor Mental Health and Addictions, NZ Ministry of Health; Child and Adolescent Psychiatrist Learning from Aotearoa/New Zealand’s COVID-19 Psychosocial and Mental Wellbeing Recovery Response
1105-1135	Refreshment Break

1135-1305	IN CONVERSATION SESSION
	“Crowded House”: Making room for the online influence in paediatric clinical practice Chairs: Anne Preisz, Neera Bhatia and Clare Delany Panellists: Bryanna Moore, Elise Burn and Neil Wilmalasundera		Global Conversations on Data Governance Chair: Tamra Lysaght and Mark Taylor Panellists: Natalia Evertsz, Jeannie Paterson, Dianne Nicol, Megan Richardson, Ponnampalam Gopalakrishnakone

1300-1430	Lunch / Program Break
1355-1430	SECRET SQUIRREL SESSION Answering all your burning questions about academic publishing Chair: Serene Ong Speakers: Professor Angus Dawson, University of Sydney, Dr Karel Caals, National University of Singapore

	CONCURRENT SESSION Full presentations will be available to view through the Presentations Gallery within the online portal prior to the scheduled sessions.
1430-1500	ORAL PRESENTATIONS 1.1 4 x 1 minute summary videos followed by discussion and Q&A Chair: Lisa Eckstein	ORAL PRESENTATIONS 1.2 4 x 1 minute summary videos followed by discussion and Q&A Chair: Rachel Ankeny
	Australian community views about sharing administrative data with private industry: Comparing findings from survey and deliberative studies Belinda Fabrianesi	Culturally Adaptive Governance – Building a new framework for equity in Aboriginal and Torres Strait Islander health research Daniel Duke, Luke Burchill
	Healthcare and technology – a clash of culture between patient-centric care and commercial incentives Joel Grieger	Whose microbiome is it anyway: the ethics of microbiome ownership in relation to Indigenous peoples Matilda Handsley-Davis
	How would the concept of a ‘health information fiduciary’ affect protection of individuals’ health data in Australia? Minna Paltiel	Dalarinji; Justifying a flexible approach to Aboriginal healthcare in the Emergency Department Paul Preisz
	Big data, healthcare and avoiding ethical debt Bernadette Richards
	Discussion & Q&A	Discussion & Q&A
1500-1530	ORAL PRESENTATIONS 1.3 4 x 1 minute summary videos followed by discussion and Q&A Chair: Anne-Maree Kelly	ORAL PRESENTATIONS 1.4 4 x 1 minute summary videos followed by discussion and Q&A Chair: Rebekah McWhirter
	Decision-making of the Queensland Mental Health Review Tribunal Sam Boyle	Responsible and responsive public health advice: What Trumps? Monique Jonas
	Understanding and improving families’ experiences of complaints and disputes in the coronial context Naomi Burstyner	Restrictions on international travel during the COVID-19 pandemic: The role of nationality Barbara von Tigerstrom
	Legal liability of clinical ethics services in Australia Carolyn Johnston, Sharon Feldman	Mandatory hotel quarantine in Australia: An empirical ethics study Jane Williams
	Competence standards should not be risk-related Neil Pickering	Learning from COVID-19 and planning for the next one: Navigating research ethics and governance in public health emergencies in Australia Jane Williams, Priyanka Pillai
	Consent to neurosurgery following traumatic brain injury Camilla Scanlan	Discussion & Q&A
	Discussion & Q&A

1530-1545	Refreshment Break
1545-1700	PLENARY #2 Chair: Angus Dawson & Tamra Lysaght
1545-1630	Keynote Address Mary Graham Adjunct Associate Professor, University of Queensland How to calibrate ethical concern – Relationalism and Autonomous Regard
1630-1700	Keynote Address Effy Vayena Chair of Bioethics, Health Ethics and Policy Lab, Department of Health Sciences and Technology From minding the gap to bridging the gap in health data governance Q&A to follow at 1900 AEST
1700-1800	AABHL AGM
1800-1900	Program Break
1900-1930	Join us for a Q&A with Effy Vayena

1930 Day 1 Concludes

Friday, 19th November 2021
0900-0930	Platform Orientation
0930-0955	Icebreaker Networking
1000 – 1130	PLENARY #3 Chair: Anne Preisz
1000-1005	Welcome to Day 2
1005-1050	Keynote Address Monique Jonas Ethical Theorist, School of Population Health, University of Auckland, New Zealand
1050-1130	Refreshment Break / Watch Recordings
	John McPhee Prize Winner Chair: Bernadette Richards
1130-1145	A revised approach to Advance Care Planning: The role of theory in achieving “The Good Result” Briony Johnston

	CONCURRENT SESSION Full presentations will be available to view through the Presentations Gallery within the online portal prior to the scheduled sessions.
1145-1215	ORAL PRESENTATIONS 2.1 4 x 1 minute summary videos followed by discussion and Q&A Chair: Tamra Lysaght	ORAL PRESENTATIONS 2.2 4 x 1 minute summary videos followed by discussion and Q&A Chair: Anne-Maree Kelly
	Deskilling or upskilling? Professional perspectives about the impact of medical artificial intelligence on clinical skills Yves Saint James Aquino	‘Severity’ as a criterion in reproductive carrier screening: Towards a normative account Lisa Dive
	AI-based nursing observations in acute psychiatric settings: Looking into the Psychiatric Panopticon Piers Gooding, Timothy Kariotis, David Clifford, Hamilton Kennedy	Employer-sponsored egg freezing: Carrot or stick? Molly Johnston
	Regulation of AI in healthcare: A cautionary tale considering horses and zebras Bernadette Richards	What’s at stake in efforts to drop the 14 day rule for human embryo research? Josephine Johnston
	Datafying disability: Ethical issues in automated decision making and related technologies Jackie Leach Scully	Moving genetic carrier screening from the clinic to the population: Ethical considerations Ainsley Newson
	Discussion & Q&A	Discussion & Q&A
1215-1245	ORAL PRESENTATIONS 2.3 4 x 1 minute summary videos followed by discussion and Q&A Chair: Carolyn Johnston	RAPID FIRE ORAL PRESENTATIONS 2.4 This programmed time is dedicated to Q&A and discussion of the below presentation Chair: Rachel Ankeny
	Regulating voluntary assisted dying practice: A policy audit from Victoria, Australia Eliana Close	Near-horizon speculative technology meets empirical bioethics: Policy, methodology and normativity Stacy Carter Population wide reproductive carrier screening for deafness; lessons learnt from those who want the information but don’t know what they would do with it Lucinda Freeman Thinking twice about routine uptake of non-invasive prenatal testing: Are we placing undue pressure on expectant parents? Isabella Holmes Towards clarity about the ethics of human-animal Chimera research Josephine Johnston What are important ways of sharing power in health research priority setting? Perspectives from people with lived experience and members of the public Bridget Pratt
	When is an objection conscientious? Giuliana Fuscaldo, Lynn Gillam
	Patient and family perspectives on voluntary assisted dying regulation: An Australian and Canadian comparison Ruthie Jeanneret
	Navigating ethical diversity: A qualitative interview study of clinicians’ experiences in the implementation period prior to VAD becoming available in their hospital in Victoria, Australia Rosalind McDougall
	Conscientious objection in Australia: A comparison between voluntary assisted dying legislation and abortion legislation Ronli Sifris
	Advance consent for medical assistance in dying: Perspectives from Canada Caroline Variath
	Discussion & Q&A
1245-1345	Refreshment Break / Watch Recordings
1310-1345	SECRET SQUIRREL SESSION Advice on how to engage with media about bioethics and health law issues Chair: Cynthia Forlini Speaker: Dr Ros McDougall, University of Melbourne

1345-1515

IN CONVERSATION SESSION

Patients Behaving Badly

Chairs: Anne-Maree Kelly and Neera Bhatia
Panellists: Ian Freckelton, Ros McDougall, and Gerben Keijzers

1515-1545

Refreshment Break / Watch Recordings

	Max Charlesworth Prize Winner Chair: Anne-Maree Kelly
1545 – 1600	Suicide risk assessments: A scientific and ethical critique Mike Smith
	CONCURRENT SESSION Full presentations will be available to view through the Presentations Gallery within the online portal prior to the scheduled sessions.
1600-1630	ORAL PRESENTATIONS 3.1 4 x 1 minute summary videos followed by discussion and Q&A Chair: Mark Taylor	ORAL PRESENTATIONS 3.2 4 x 1 minute summary videos followed by discussion and Q&A Chair: Neera Bhatia
	What constitutes equitable data-sharing in global health research? Views from low and middle income Countries Natalia Evertsz	‘The Herald Sun test’: The function and purpose of Victorian termination of pregnancy review committees Hilary Bowman-Smart
	Do research participants in Australia have a right to receive their raw genomic data? Carolyn Johnston, Jane Nielsen	Death and organ donation: What do the Australian public think? George Skowronski
	The importance of benefit sharing for public trust in genomic data sharing Dianne Nicol	The legalities of postmortem gestation Cameron Stewart
	The effect of context on public trust in genomic data sharing: Findings on waivers of consent and beyond Vanessa Warren	What’s the issue? Redesigning an ethics seminar to foster an inclusive and relational learning environment for medical students Cynthia Forlini, Jacqueline Savard
	Discussion & Q&A	Discussion & Q&A
1630-1700	ORAL PRESENTATIONS 3.3 4 x 1 minute summary videos followed by discussion and Q&A Chair: Nathan Emmerich	RAPID FIRE ORAL PRESENTATIONS 3.4 This programmed time is dedicated to Q&A and discussion of the below presentation Chair: David Isaacs
	Rethinking human challenge trials in the age of COVID-19 Ian Freckelton	Can we make the case for a pandemic ethic? Pandemic modeling: A case study for adopting best practices globally Cheryl Mack
	Moral distress amongst oncology health-care workers as a consequence of constraints upon routine care during the COVID-19 pandemic: Do health-care institutions have a moral obligation to acknowledge and address? Sarah Heynemann	Funder Priority for Vaccines: Implications of a Weak Lockean Claim Muralidharan Anantharama
	One year on from the Medical Research Amendment to the Guardianship and Administration Act 1990 (WA) Selina Metternick-Jones	Indonesian policy strategy outlook on the deployment policy of COVID-19 vaccine: A conceptual misunderstanding of vaccine utility? Muhammad Rizky Nur Karim
	What are the outcomes of the use of police powers under section 351 of the Mental Health Act 2014 (Vic)? Anne-Maree Kelly	Racism, justice, and bowel screening policy: A cautionary tale in Aotearoa New Zealand Sophia Barham
	Discussion & Q&A

1700-1715	Refreshment Break
	PLENARY #4 Chair: Angus Dawson
1715-1830	Keynote Address Anne Poelina

1830 Day 2 Concludes

Saturday, 20th November 2021
0900-0930	Platform Orientation
0930-0955	Icebreaker Networking
1000-1005	Welcome to Day 3
1005-1135	IN CONVERSATION SESSION
	Student and Early Career Researchers Choose your own adventure in academia Chair: Cynthia Forlini Jenny Kaldor, Jane Williams, Voo Teck Chuan, Alexandra Wakeley
1135-1230	*Refreshment Break / Watch Recordings*

	CONCURRENT SESSION Full presentations will be available to view through the Presentations Gallery within the online portal prior to the scheduled sessions.
1230-1300	ORAL PRESENTATIONS 4.1 4 x 1 minute summary videos followed by discussion and Q&A Chair: Lisa Eckstein
	‘Brainwork practices’: Brain health advice on how to avoid dementia by aged-care stakeholders Kristina Chelberg
	User led modification of standard medical care for children: An analysis of healthcare professionals’ legal duties of care Carolyn Johnston
	Re Imogen: The ‘emergence of alternative thinking about treatment’ for adolescents with gender dysphoria Michelle Taylor-Sands, Georgina Dimopoulos
	Ethical issues in alcohol policy: Initial results of a qualitative study Mary Walker
	Discussion & Q&A
1300-1330	ORAL PRESENTATIONS 4.3 4 x 1 minute summary videos followed by discussion and Q&A Chair: Nathan Emmerich	ORAL PRESENTATIONS 4.4 4 x 1 minute summary videos followed by discussion and Q&A Chair: Stacy Carter
	The role of medical perspectives in disclosing alternative treatments post-Montgomery Louise Austin	Compensating vaccination injuries in Australia: The COVID-19 Vaccine Claim Scheme Bill Madden, Tina Cockburn
	Where to from here? Re-examining compulsory treatment in light of the findings of the Victorian Royal Commission into Mental Health Mikaela Brusasco	Vaccination of individuals lacking capacity during a public health emergency Tess Johnson
	Planning for the future: Opportunities for connection through a collaborative approach to Advance Personal Planning Briony Johnston	‘We are not epidemiologists’: How effective is legal scrutiny of vaccination policy? Rebekah McWhirter
		Vaccine hesitancy and COVID-19: A social-ecological approach to regulation Sam Roach
	Discussion & Q&A	Discussion & Q&A

1330-1445

Refreshment Break / Watch Recordings

	CONCURRENT SESSION Full presentations will be available to view through the Presentations Gallery within the online portal prior to the scheduled sessions.
1445-1515	RAPID FIRE PRESENTATIONS 5.1 This programmed time is dedicated to Q&A and discussion of the below presentations Chair: Mark Taylor	RAPID FIRE PRESENTATIONS 5.2 This programmed time is dedicated to Q&A and discussion of the below presentations Chair: Casey Haining
	An obligation to contribute to “herd knowledge” in data linkage research? Owen Bradfield	‘It’s a good idea, but …’: Perspectives of SA rural and urban lawyers of Advance Care Planning legislation and documentation Jaklin Eliott
	Benchmarking public attitudes towards secondary use of health data Priyanka Pillai	Anticipated impacts of voluntary assisted dying legislation on nursing practice Jessica Snir
	Developing best practice for the public sector in Big Data ethics and policy Lucy Carolan	Development of Voluntary Assisted Dying Training in Western Australia Katherine Waller
	Experience of Institutional Review Board of Singapore Institute of Technology in relations to emerging Asean/Asian rules and requlation with special relevance to Singapore Ponnampalam Gopalakrishnakone	End of Life Law for Clinicians: Improving nurses’ and allied health professionals’ end of life practice Penny Neller
	Regulation of biomaterials in the age of Datafied Bodies: Reformulating the discourse Maeghan Toews	Legal issues in palliative and end-of-life care for selected allied health professionals: A scoping review Rachel Feeney
		Patient and family perspectives of the Voluntary Assisted Dying Act 2017 (Vic): a qualitative study Ben White

1515-1545	RAPID FIRE PRESENTATIONS 5.3 This programmed time is dedicated to Q&A and discussion of the below presentations Chair: Lisa Eckstein	RAPID FIRE PRESENTATIONS 5.4 This programmed time is dedicated to Q&A and discussion of the below presentations Chair: Angus Dawson
	A survey of the availability of a clinical ethics support system for healthcare professionals in Aotearoa, New Zealand – 2021 Mascha Moerenburg
	Could expansion of National Sentinel List to include medical device adverse event reporting be an effective first step towards addressing underreporting of adverse events by health professionals? Aminath Mariya	Applying the flourishing PROM to paediatric populations: Key ethical considerations Patrick Ryan
	The ethical case for extending the use of General Anaesthesia beyond the operating theatre to the care of dying patients who desire to be unconscious Antony Takla	Bringing the outliers in, with dignity: Cognitive disability, personhood and human rights Juila Duffy
	The accountability of telemedicine electronic system based on Indonesian legal perspective Muhammad Rizky Nur Karim	Embedding social justice into sustainable urban planning Bridget Pratt
	The characteristics of Australian doctors with medical negligence claims: A prospective cohort analysis of the MABEL survey Owen Bradfield	Parallel importation of patented health technologies: An analysis of the price-reducing policy option Muhammad Zaheer Abbas
	Views of Australian Doctors on Defensive Practice: “It’s easier to talk about our fear of lawyers than to talk about our fear of looking bad in front of each other.” Nola Ries

1545-1600	*Refreshment Break / Watch Recordings*
1600-1700	PLENARY #5 Chair: Rachel Ankeny
1600-1645	Keynote Address Luke Burchill Mayo Clinic, Rochester, USA & University of Melbourne / Royal Melbourne Hospital
1645-1700	Wrap Up, Handover & Close
	1700 Day 3 / Conference Concludes

AVAILABLE ANYTIME
ON-DEMAND PRESENTATIONS On-Demand presentations are available for your viewing at anytime during the conference through the presentations gallery. There will be no programmed Q&A time for these presentations. If you wish to contact the presenters with any questions or comments, you will be able to connect with them during the conference through the networking hub.
1	Here Today, Gone To-Marrow:Paediatric Consent to Bone Marrow Donation Under the Victorian Human Tissue Act 1982	Mikaela Brusasco
2	Leaving a Mark: Lessons on Discrimination from Vaccine Scars to COVID-19	Milla McLean
3	Where does responsibility lie? A new legal analysis of Clinical Decision Support Systems	Megan Prictor
4	Recording our genes: which way forward for Australian law on genetic data and electronic medical records?	Megan Prictor
5	Collective Consent in Emerging Health Data Platforms.	Timothy Kariotis
6	Challenges for International Medical Graduates before and during the COVID-19 pandemic	Elizabeth Fenton
7	Mandatory vaccination of health profession students: Duty of Care or infringement on autonomy	Roseanne Sadd
8	How bereaved families see good care and communication in intensive care	Drew Carter
9	Disclosure: Not One but a Series of Conversations and Actions	Serene Ong
10	Conscientious Objection and Voluntary Assisted Dying: A Continuum of Approaches Described by Health Professionals	Casey Haining
11	The Value of Genetic Relatedness in the Liberal State	Markus Labude
12	If bioethics activism, then how?	Kathryn Mackay
13	Making decisions about older peoples’ expression of sexuality in residential aged care!	Deirdre Fetherstonhaugh
14	Should COVID-19 vaccination of frontline healthcare workers be mandatory?	Owen Bradfield
15	Rethinking Online Interviews	Serene Ong
16	Confident, Cautious, Opposed… Using Legitimacy to Connect Disparate Stakeholder Views of Accelerated Access to Medicines	Jessica Pace
17	Health Information in an Age of Big Data and Predictive Analytics	Louise Wilsdon
18	COVID-19 and involuntary detention – An emergency medicine or emergency management responsibility?	Joel Wilson
19	Is waiver of consent for the use of health information for research acceptable to emergency department patients?	Chase Schultz-Swarthfigure

2021 AABHL Program

Print

Australasian Association of Bioethics & Health Law

Online Conference Program

Thursday, 18th November 2021

Learning from Aotearoa/New Zealand’s COVID-19 Psychosocial and Mental Wellbeing Recovery Response

Friday, 19th November 2021

Saturday, 20th November 2021

ABOUT THE ASSOCIATION

CONFERENCE MANAGERS

LINKS

ACKNOWLEDGEMENT OF COUNTRY