Mrs Nina Roxburgh1
1Monash Bioethics Centre, Monash University, Melbourne, Australia, 2Digital Health CRC, Australia
Biography:
Nina Roxburgh is currently completing her PhD at Monash Bioethics Centre, Monash University. Her research focuses on digital health ethics and health policy. She is one of the Digital Health Cooperative Research Centre's Emerging Leaders and she has previously worked in youth policy and advocacy, with a particular focus in research and community activation around social determinants of health. Nina holds a Master of Bioethics and a Bachelor of International Relations (with Honours).
Abstract:
Whether patient self-reports on their experiences and outcomes are 1) collected, 2) reflected on, and 3) drivers of change in practice and professional standards can be significantly influenced by the attitudes or beliefs that health professionals have towards this kind of health information, as well as the workplace and professional culture around them. As health services increasingly implement routine collection of patient-reported data using measures such as questionnaires and surveys, it is important to understand whether these can help truly centre the patient's lived experience in decision making and treatment recommendations and what challenges may be evident for health professionals in integrating these data into day-to-day practice.
In this presentation, we present the results from our qualitative interviews with doctors, surgeons, nurses and other health professionals working in Oncology and Mental Health, revealing the key ethical and practical considerations that may shape the way these data are perceived and prioritised by health care workers across both private and public health and in different medical contexts, as well as highlighting the perceived (moral) obligations health professionals have towards this information in their practice.