Sharing health and social welfare data across jurisdictions and institutions in Australia: A scoping review protocol

Dr James Scheibner1, Professor Bernadette Richards2, Professor Tina Cockburn3, Ms Nicole Kroesche3, Mr Luke Wakefield3

1Flinders University, 2University of Queensland, 3Queensland University of Technology

Efficient sharing of health and social welfare data is important for ensuring the effective delivery of healthcare and social welfare services, quality improvement and robust evidence-based decision-making. Despite these benefits, and the increasing amounts of data being collected by hospitals, healthcare providers and government agencies, health and social welfare data is underutilized in Australia. The extent to which actual or perceived jurisdictional conflict between state and Federal laws prohibit data linkage and data sharing is contested. Therefore, this conference presentation describes a systematic scoping protocol for identifying the impact of data privacy and other legislation on health and social welfare data sharing in Australia. Specifically, this protocol seeks to determine whether legislative differences in Australian data privacy and public health laws are reported in published literature as a justification for not sharing data. This protocol achieves this aim by applying a PRISMA guided keyword-based search strategy to four databases (ProQuest, PubMed, Scopus, and Web of Sciences). The results returned from this search strategy will include peer reviewed publications relying on policy and doctrinal analysis, as well as empirical or scientific research pieces. Following abstract filtering and full text assessment, a subset of the results returned will be qualitatively analysed using deductive and inductive coding. These results will then be compared against a doctrinal analysis of state and Federal data privacy and public health laws in Australia. This process will inform further policy making and legislative reform with respect to increasing data availability.


Biography:

Dr James Scheibner – bio to come

Nicole Kroesche – bio to come

Luke Wakefield – bio to come

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