Month: September 2022

Dr Jessica Bell1 1University Of Warwick Law School Data trusts are an emerging and varied concept; proposed as a mechanism of data stewardship and a legal structure for data governance with the potential to empower individuals and communities by authorising...

Ms Libby Massey1 1Mjd Foundation, 2James Cook University Several remote Aboriginal communities across north and central Australia experience high rates of Machado Joseph Disease (MJD/SCA3), an incurable, slowly progressing, fatal genetic neurodegenerative disease. Despite a predominantly adult-onset, MJD also affects...

Dr Hui Yun Chan1, Ms Hui Jin Toh1 1Centre for Biomedical Ethics, Yong Loo Lin School of Medicine, National University of Singapore Scalable mobile digital health technologies using big data, artificial intelligence and robotics have the potential to shift focus...

Miss Lida Sarafraz1 1University Of Utah Many medical devices in current use have been approved based on clinical data from trials that excluded women in the past. Consequently, since these devices are tested only on male research participants, women experience...

Dr. Zohar Lederman1 1Rambam Healthcare Campus Loneliness is a major public health concern, particularly during pandemics such as Covid. It is extremely common, and it poses a major risk to human health. Technological solutions including social media, robots, and virtual...

Dr Hojjat Soofi1 1Macquarie University Vulnerability is a widely used concept in bioethical literature. There are concerns, however, that most uses of vulnerability employ a poorly defined concept of vulnerability. Motivated by such concerns, scholars have mounted two distinct challenges...

Ms Jindalae Skerman1 1Sydney University Homebirth is an emotive and polarising issue despite being a minority choice (less than 0.4% in 2020). Pregnant people who choose homebirth when they are assessed as “high-risk” are making an even more contentious choice....

Dr Mark Howard1 1Monash University Current evidence for the application of machine learning-based clinical decision support (MLCDS) for treatment planning in newly-diagnosed epilepsy is insufficient to establish the downstream benefits to patients. While MLCDS has demonstrated good analytic accuracy and...

Dr Anson Fehross1 1Sydney Health Ethics, University Of Sydney Group substitute decision maker (SDM) appointments refer to cases where a patient, anticipating future incompetency, appoints multiple SDMs to decide on their behalf. Despite the availability of group SDM appointments throughout...

Dr Sascha Callaghan1, Dr Liz  Sutton 1University Of Sydney This paper presents a high level discourse analysis of the major midwifery textbooks used in Australian midwifery training.  The analysis uses grounded theory to identify the key themes and values evident...