Month: September 2022

Dr Muralidharan Anantharaman1 1Centre For Biomedical Ethics, National University Of Singapore There are no widely agreed upon standards about how Institutional Review Boards (or equivalent ethics review committees) should handle disagreement within boards, between boards, and between board members and...

Dr Hilary Bowman-Smart1,2, Dr Molly Johnston2 1Ethox Centre, University of Oxford, 2Monash Bioethics Centre, Monash University Counselling prior to non-invasive prenatal testing (NIPT) is recommended to promote informed decision-making and reduce the risks of routinisation. NIPT providers produce a range...

Ms Carolyn Adams1, Dr Felicity Flack2 1Macquarie University, 2Population Health Research Network Access to population-wide data collections — such as the Medicare data collection, hospital admission and discharge records, and birth and death registers — is essential to support public...

Ms Ruthie Jeanneret1 1Australian Centre for Health Law Research, Queensland University Of Technology Abstract: Voluntary assisted dying (VAD) laws have been enacted in all Australian States. Patients are central to VAD because they provide the impetus for legalisation (a compassionate...

Professor Stacy Carter1, Dr Yves Saint James Aquino1, Dr Mark Howard2, Associate Professor Bernadette Richards3, Professor Jackie Leach Scully4 1Australian Centre For Health Engagement, Evidence and Values (ACHEEV), University of Wollongong, 2Department of Philosophy, Monash University, 3Academy for Medical Education,...

Professor Jackie Leach Scully1 1UNSW Genomic knowledge is transforming our understanding of many conditions, including many forms of intellectual disability. While advocates claim this will lead to improved health outcomes, there is currently limited evidence to evaluate that claim, and...

Professor Ben White1, Ms Ruthie Jeanneret1, Professor Lindy Willmott1, Dr Eliana Close1 1Australian Centre For Health Law Research, QUT The Victorian voluntary assisted dying system has now been in operation for 3 years. Patient perspectives are critical for assessing how...

Mr Ryan Friets1 1Centre For Biomedical Ethics, National University Of Singapore A concern clinicians have with attempting to facilitate greater relational autonomy, which has been tied to better doctor-patient relationships and more satisfactory patient health outcomes, is managing potential instances...

Dr Danya Vears1,2, Dr  Fiona Lynch1,2, A/Prof Stephanie Best2,3,4,5,6, Dr Yan Meng2, A/Prof Ilias Goranitis2, Dr Christopher Gyngell1,2 1Murdoch Children’s Research Institute, 2University of Melbourne, 3Peter MacCallum Institute, 4Victorian Comprehensive Cancer Centre, 5Sir Peter MacCallum Dept of Oncology, 6Australian Genomics...

Prof Rachel Ankeny1, Prof Joan Leach2, Distinguished Emeritus Professor Dianne Nicol3 1School of Humanities, University Of Adelaide, 2Australian National Centre for the Public Awareness of Science, Australian National University, 3Faculty of Law, University of Tasmania Practices associated with stem cell...